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Calne family walk in support of charity
9:18am Friday 2nd May 2014 in News
Eleven-year-old Azaria Moyse completed a 10km walk on Good Friday to raise awareness of Pompe Disease, a rare condition that has affected her since birth.
Azaria, of Maple Close, Calne, was eight months old when she was tested for the disease which can fatally damage the heart, respiratory and skeletal muscles in infants.
The walk, round Plymouth where she was born, has raised at least £750 in aid of the Association of Glycogen Storage Disorders.
Eleven family members and friends took part, including parents Jo and Ian, brother Isaac, 13, and sister Kezia, 15. Mrs Moyse, 44, an assistant at Pewsey Library, said the walk also celebrated ten years of a new drug treatment, which gave Azaria a new lease of life.
She said: “I was really pleased she managed it, but she was shattered at the end. It was more tiring for her than the rest of us.”
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